Comments on Fumarase, and Daphne’s Article on Multiculturalism andTolerance

Dear Network:

Firstly, FAYE KEMMIS of Victoria, a retired nurse, is a loyal, hard-working member of this campaign.  She wrote me a short precise on her work over the past 3 years on attempting to get action on fumarase disorder in the FLDS:

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Subject: Re: Polygamist on trial ….Raymond Jessop’s genetics

Hello,

Nancy I tried getting the RCMP involved via the former BC AG, Wally Oppall, regarding this disease.

The information collected by Dr. Tarby working with the FD babies in Hilldale etc., shows that he knows full well Fumarase Deficiency disease will be on the uprise.

(The Internet has sufficient documents/stories about this). I wrote many letters regarding this disease to various agencies, governments, and individuals with little

or no response however a secretary at Texas U did say they would “look into it…”. This was 2.5 years ago.

Wally Oppall told me it was necessary for there to be factual or even possible evidence that a “Baby Graveyard” beside the Birthing Cottage of Bountiful BC, had, indeed,

bodies that had showed FD. Thus, nothing was done, since this is a closed and closeted sect.

Faye Kemmis (retired nurse)

http://www.time.com/time/nation/article/0,8599,1732498,00.html

“Your family tree should not be a wreath”…

“It’s not something they are willing to do,”said Dr. Tarby in trying to get the sect to change.

ROBERT MATAS, writer for The Globe and Mail newspaper (Canada) also wrote about fumarase deficiency disorder in one of his columns:  http://www.theglobeandmail.com/news/world/article683299.ece Robert has been a member of the news group for this campaign for years.

MARCI HAMILTON, author of God vs. The Gavel; and, Justice Denied: What America Must Do to Protect Its Children has this comment re:  Daphne Bramham’s article on multiculturalism and tolerance:

Subject: Re: Limits to tolerance are needed if multicultural Canada is to work

Kudos to Daphne Bramham for keeping the public’s attention focused on the evils of polygamy.  A key in this sort of public debate about the harm rendered by religious groups is to clearly identify the secular harm that the religious groups cause. There are at least three flowing from polygamy.

First, harm to the equality of women.   There is no other way to characterize it: polygamy in the vast majority of its applications makes women subservient to men in every sphere of life.  It is a matter of equality between the sexes.  The cultures that institute and perpetuate polygamy are hostile toward women’s freedom and independence.  Even the extreme rare polygamous community that does not intend to do so, does so symbolically by creating an equation between one man and multiple women.

Second, harm to children.  In order to achieve the disproportion of men to women, they must increase the supply of women and decrease the supply of men. The FLDS accomplishes this by forcing adolescent and teenage girls to marry middle-aged men pushing a segment of the teenage boys out of the community.  Polygamy, thus, becomes a driving force behind criminal child abandonment and statutory rape and felonious bigamy.  It is a fact that Any organization that seeks to give men as many women and children, and that creates a hierarchy of men according  to how many women and children they accumulate, is going to be driven to these measures.

Third, harm to society.  These organizations stunt women’s capacity to fully realize their potential, depriving all of society of their talents.   They financially cost society when one man cannot support all of the women and children under him and, therefore, the “inferior” wives turn to public welfare.  Society is responsible for the welfare of children, and when it permits these organizations to persist, it becomes a partner in the child abuse.

Marci A. Hamilton

Paul R. Verkuil Chair in Public Law

Benjamin N. Cardozo School of Law

Yeshiva University

55 Fifth Avenue

New York, NY 10003

STOPPOLYGAMY

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11 responses to this post.

  1. Posted by Faye on November 4, 2009 at 2:22 am

    Please keep in mind the enclosed internet site is not up-to-date, in fact when it discusses Fumarase Deficiency in the polygamist sects the data is from 1990. For further information check the Internet for Dr. Theodore Tarby/fumarase deficiency.
    The data he collected revealed children in the polygamist society with half the size of a normal brain; of course this causes multiple medical problems from encephalitis, to seizures to death of the child.
    The UN states that the only other society that experiences this disease is in Africa. The polygamist sect in Hildale/Colorado City has the world’s largest population of FD and this is very small documented to be only 13. But that too needs updating, and keep in mind those figures are only the figures that the sect have made easily available since the mothers had no option except bring in a learned medical person. You would have to read the statements Dr. Tarby has made to fully understand the horror of this wholly unnecessary disease.
    This site below offers an understanding of FD and has erred in the number “world wide”. UN stated 3 years ago that Hildale/Colorado City have the largest population of FD at 13 and Africa had 8 known cases though this too is long outdated.
    http://en.wikipedia.org/wiki/Fumarase_deficiency
    Dr. Tarby’s found this disease in the 1990’s in the closed sect and it is believed thousands carry this defective gene, with no known cure.
    http://www.phoenixnewtimes.com/2005-12-29/news/forbidden-fruit/

    Reply

  2. Posted by J.R. on November 4, 2009 at 3:00 pm

    I know it may be hard for you, but could you please try, in your own mind, in your writing, and especially in your political advocacy, to separate the idea of plural marriage from the idea of loony cults, or loony cultures, that treat women as property?

    I’m one of two men married in every meaningful way to one woman.

    I think that simple fact makes it pretty obvious that my family has nothing to do with the whole phenomenon that you’re talking about.

    Nonetheless, I’ll drill it in. We’re not some kind of religious cult. Two of the three of us are atheists, and religion is not a major part of any of our lives. We’re not immigrants carrying on some old, scary, alien tribal culture. We’re homegrown North Americans who’ve come to this, if anything, in defiance of tradition. We’re not exploiting kids. The youngest of us was 30 when we came together. We’re not isolated or inbred. We live in the mainstream in the middle of the city. We’re not on welfare. In fact, we pay pretty high taxes. The idea that any of us was forced into this, or is any more trapped than a person in a traditional monogamous marriage, is frankly laughable. We have lots of outside resources.

    We are raising a child. She is not being groomed for an arranged marriage, she is not being denied education, she is not being taught that she’s breeding stock, she is not in material want, and she is not being isolated from other points of view. When she grows up, she will do what she likes and marry (or not) whomever she wishes.

    We are also not alone. We know others like ourselves, and there seem to be more and more all the time. We are part of what seems to be a growing tradition or subculture of modern polyamory: one that’s non-religious, free-thinking, probably less sexually exploitive than “mainstream” culture, and often very feminist. Polyamorists probably don’t outnumber polygamous immigrants in Canada, not yet anyway. We probably DO already outnumber the FLDS. We’re just less visible, because we don’t live in a compound somewhere.

    The problem is that the law you want to defend makes us, and those like us, into criminals right alongside the FLDS. No distinction is made; plural marriage equals criminality.

    I’m sorry, but I’m not willing for me, my family, or my friends to be collateral damage in your war against whatever the FLDS may have done. If they’re mistreating girls, go after them for mistreating girls, rather than for the number of people they marry.

    So, I’m afraid, no kudos to Daphne Bramham, or to you, from this little corner of the world.

    Reply

  3. Posted by Susan Stickevers, MD on November 4, 2009 at 7:37 pm

    The key to eradicating fumarase deficiency is detection of the carrier state by means of a blood test.
    This test could or should be offered to FLDS adolescents prior to marriage. Knowledge regarding
    carrier state could potentially prevent marriages between carriers, thus preventing offspring with the disease.

    Reply

    • Posted by Faye Kemmis on March 7, 2011 at 8:37 am

      Dr. Tarby has time after time, told the FLDS that incest of their children to whomever male in the sect they wish, will, and does, make for this disease. Time after time, they refuse to listen to him and continue incest. They have been told about this many times. The will not listen..He stated in one comment that this disease “…will become more prevalent as the population grows…”. This disease of the FLDS is a well known fact in his clinic and I expect, in much of the medical world. The continually rising health care costs for these infants that survive birth with Fumarase Deficiency will become substantial. Some are born with half a brain and need 24 hour care. These infants are extremeley deformed; most do not live long and unfortunately these infants experience great pain in this disease. It probably will never be known how many with this disease are at the “Baby Cemetery” in the United States FLDS.

      Reply

  4. Posted by J.R. on November 5, 2009 at 12:48 pm

    OK, I read it. And it’s nice to see it, because it’s the first thing I’ve seen out on the public Web where anybody in the anti-polygamy movement has acknowledged the distinction. And, yeah, I know that as soon as I write that a bunch of people are going to point out other places. And I thank anybody who does take the time to make the distinction.

    But that acknowledgement is only a step. It doesn’t solve the main problem. Regardless of whether they know the difference, a bunch of anti-polygamy people are still willing to destroy my family as long as it lets them get at the coerced religious polygamists (or the coerced cultural polygamists, depending on who you talk to).

    I know that nobody is really targeting us, not in the mainstream anti-polygamy movement anyway. Nonetheless, mainstream anti-polygamy advocates constantly advocate for positions that damage us, using rhetoric that damages us.

    The big polygamy issue in Canada, right at the moment. is the Bountiful FLDS case. In that case, the argument is over a specific statute- whether it’s constitutional, whether it should be enforced, whether it’s right. The statute in question says nothing at all about religion or coercion, and it very clearly and directly outlaws my family and families like it.

    ALL of the material I’ve seen on that issue from anybody on the anti-polygamy side, every single Web posting, news comment, interview quote, whatever, has advocated retaining and enforcing the existing law exactly as it is.

    It doesn’t do us a lot of good if people recognize the distinction in their own minds,and admit to the distinction in footnotes here and there, if they continue to advocate for a law that does not recognize the distinction. We still end up treated as criminals, at least in theory and very possibly in practice, too.

    Instead of obstinately demanding to enforce the exiting law, why not advocate to replace it with something that criminalizes the actual abuses? Done properly, that would eliminate constitutional issues and put a whole lot more people on your side. Me, for instance.

    Reply

  5. Posted by J.R. on November 5, 2009 at 12:51 pm

    Oops. I didn’t realize that would get posted ahead of or instead of what I was replying to. Somebody using the handle “stoppolygamyabuse” asked me to read this:

    http://brainpuzzle.wordpress.com/about-2/

    … which is, paraphrased, basically a statement from the operator of that site that the problem she cares about is coerced religious polygamy, not “polyamory, swingers, free love, open-relationships, non-religious or non-coerced polygamy, or any other situation where people with multiple partners are all united in a loving, abuse-free relationship”.

    Reply

  6. Well, I am from neither side or both. This is a complex issue. Most of the babies born in Cedar City–if not most then many, as of 11 years ago, had seriously deformed infants. 2 out of 3 in my sister’s birthing class who had their birthdays together. And anyone with a family member in Iraq needs to prick their ears, there will be many similarly affected infants from this war. And yes it is unfair that more non-polygamous people weren’t on this site, but maybe that was just as well, I hope some substantial discussion has been happening off this site.

    Reply

  7. Posted by Faye Kemmis on March 8, 2011 at 1:18 am

    michamartina your comment gives a good point. Iraq is so far away we seem only to think of it when violence occurs..as it does so often. Reader’s Digest, Canadian version, has an excellent true story on the marriage of a nine year old Iraqi child,really no one knew if she was 9 or 10, to a violent,aged man and he raped her repeatedly, hit her, starved her etc. This child is intelligent and went through great hardship to find a “court” of “law” where she eventually received a “divorce”. A ten year old receiving a divorce. In the western world it is an oxymoron of sorts isn’t it. Literally a baby herself, she was meant to produce more just as the western world of polygamy does. The man had promised her father that because she was not yet menustrating that he would not have sexual intercourse with her. He did not have sexual intercourse with her as, of course, it was rape via power.
    A friend recently responded to this true story with the news that she had friends just returning from Iraq who had worked in a hospital. They attended a movie theatre and much to their surprise say countless men, most of whom where, as they put it: ‘making out’. I relate this to all of you because it gives us a clearer picture perhaps of, what we are dealing with. This is not a cultural act, and it certainly is not a religious act. I believe homosexuality is forbidden in Muslim countries. [I am sure I will be corrected if this is incorrect].It is a human frailty perhaps, to have enmass, the acts of ‘making out’ in an all male audience. My take on this anyway. I believe these human frailties, when not channeled, make for polygamy. I fully expect reprimand here if I am out of line. But I believe to fully understand the psychology behind polygamy/power we must look under each rock!

    Reply

  8. Posted by Faye Kemmis on March 12, 2011 at 7:48 am

    Nancy and Susan,
    Both websites have substantial information on this disease, thanks. Hope everyone reads this. Emotional, physical and spiritual abuse is not the only disabling factor of polygamy and these diseases prove it. It is too bad it was not entered in court somehow; the ongoing health care costs will be a huge burden to states, provinces and ultimately countries. Dr. Tarby stated it will not take long before the numbers of cases of fumarase deficiency will climb rapidly. Of course if the midwive is the only one present and the infant does not survive only the Baby Cemeteries will have proof; and then of course the state will not have had to provide health care unless the mother succumbs to mental instability but as it is presently the state is providing health care free.

    Reply

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